CALL FOR IDEAS-DEADLINE APRIL 30, 2009

The Myrovlytis Trust and Partnership for Cures created the Rare Genetic Disease Pilot Grant Program to bring researchers and funders together to test new hypotheses that can produce better treatments and cures for patients with rare genetic diseases.

THIS PROGRAM WILL OFFER UP TO FOUR (4) $25,000 ONE YEAR PILOT GRANTS THAT CAN HAVE A DIRECT AND SIGNIFICANT IMPACT ON THE BHD PATIENT POPULATION WITHIN THE NEXT 12-24 MONTHS.

Clinicians and researchers have scientific and clinical insights, patient anecdotal results, technology transfer ideas and research skills that could impact patients with rare genetic diseases, and the Myrovlytis Trust and Partnership for Cures bring the inspiration, financial support and business management to support this new hypothesis rare genetic diseases research. These Pilot Grants can make quick and direct impacts on patients by translating drugs from one disease to provide a "new" treatment in another disease, by scientifically validating anecdotal successes of Western or Eastern medicine in a particular disease, or accelerating the use of a drug or other therapy from late stage to early stage in a particular disease.

We are focusing these efforts on the rare genetic disease called:
BIRT HOGG DUBE (BHD) SYNDROME

YOU DO NOT HAVE TO BE A BHD EXPERT TO PROPOSE IDEAS!!!

CLICK HERE TO SEE THE SCIENTIFIC SYNOPSIS OF BHD AND ITS KNOWN OR PROPOSED MECHANISMS OF ACTIONS

*Please note: this call for ideas is not a request for full research proposals for grant funding. We are requesting ideas for translational research projects, which will be screened by the Foundation Staff, Science Advisors and Funders, and then specific invitations for a more formal application will be made very quickly to those who submit the most promising ideas.

IDEA SUBMISSION INSTRUCTIONS

Ideas must be submitted electronically to Bruce@4Cures.org. Preferred file formats are *.doc or *.pdf, but we will accept submissions that come solely in the body of an e-mail. Paper submission will not be accepted. Submissions must be no longer than 1500 words (about two [2] pages excluding literature references) and utilize type no smaller than 11 point (font) size.

Submissions must include the following elements by April 30, 2009:

Project Summary Statement - Briefly describe the idea for one more research project and provide justification for the suggestions with background information. If you have more than one idea, please send each as a separate submission.

Clinical Impact - Describe how the research would result in a direct and significant impact on the fibrofolliculomas, pneumothorax or RCC in BHD patients.

Provide a timeline required to complete the research, which cannot be more than 12 months.

Estimated Costs - Please provide an overall budget number for the entire project. Budget explanation is NOT required at this time. Grantees can received 80% of requested funds through this grant opportunity. The funders require a 20% match from the institution or other resources. This funder does not allow for institutional overhead.

Key Literature References - References to publications supporting the suggestion may be included.

Please send your contact information, including cell phone and e-mail addresses.

If you have additional questions:

Email (preferred) Bruce@4Cures.org
Phone: (312) 696-1366